The International Shwachman-Diamond Syndrome Congress brings together researchers, physicians, healthcare professionals, patients, families and patient advocacy organizations from around the world.

This unique meeting provides an opportunity to share scientific advances, strengthen international collaborations and improve the care and future of individuals living with Shwachman-Diamond syndrome.

Because SDS is a rare disease, progress depends on bringing together expertise from different countries and disciplines. This congress is designed to foster these exchanges while ensuring that patients and families remain at the heart of our discussions.

Organizing such an international event requires significant resources. Your support will help us:

• deliver a high-quality scientific program;
• facilitate the participation of patients and families;
• provide translation services during dedicated patient sessions;
• encourage the attendance of young investigators and international experts.

Every donation, regardless of its amount, contributes to making this event possible and to strengthening the global SDS community.

Thank you for your generosity and your commitment.